Raise awareness on Rare Disease Day – February 29th 2020
We have two campaigns to help raise awareness on the 13th international Rare Disease Day.
Walking course California.
IAMGSD has publications in English (a few other languages) to support people with McArde disease, their families, schools, employers and doctors.
IAMGSD organises walking courses to help people improve their condition. These have so far been held in the USA and the UK, with more countries to be included in future.
IAMGSD campaigns for early diagnosis of McArdle’s and other mGSDs, the adoption of international standards of care and the provision of centres of expertise.
IAMGSD works to identify the needs of people affected by McArdle disease and other muscle GSDs, and to stimulate, encourage and support research efforts to meet these needs.