International Association for Muscle Glycogen Storage Disease
English
English
German
languages-button-flags-small_edited.jpg

Languages

Emergency
  • About us
    • Home
    • Who we are
    • Vision, Mission and Objectives
    • Governance and Policies
    • Our reports
    • Our partners
    • Our logo
    • Contact us
    • Privacy policy
    • Log in / Sign up
  • Muscle GSD
    • About Muscle GSD
    • The GSDs we cover
    • GSD3a – Cori
    • GSD5 – McArdle
    • GSD7 – Tarui
    • GSD9d
    • GSD13
    • GSD15
    • Personal stories of GSD
  • Resources
    • Publications
    • PDF downloads
    • Videos
    • Presentations
  • Campaigns
    • Our key campaigns
    • Age of diagnosis
    • Helping patients understand
    • Encouraging regular activity
    • Clinical Practice Guidelines
    • Contributing to research
  • Get involved
    • Events calendar
    • Join Global Walking Challenge
    • Sign up with IamGSD
    • Join a patient registry
    • Go on a course
    • Attend a conference
    • Join social media
    • Connect with people
    • Volunteer
    • Promote Rare Disease Day
  • Donate
    • Your donation helps...
    • Ways to donate
    • Fundraise for us
  • Medical
    • Medical emergencies
    • Primary care
    • Training support
    • Clinical Practice Guidelines
    • COVID-19 Coronavirus
    • Directory of clinicians
    • Scientific Advisory Board
    • Medical disclaimer
  • Research
    • Our research agenda
    • Current research
    • Cochrane Reviews
    • IamGSD reports
    • Research papers
What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

​

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links

GSD3a Cori disease

GSD5 McArdle disease

GSD7 Tarui disease

GSD9d 

GSD13

GSD15

If you have another muscle GSD please contact us.

© IamGSD 2017 – 2022.

DONATE

Please donate online to support our work.

REGISTER

Register with us for special access to the web site, download PDFs and be kept in touch by email.

  • Facebook Social Icon
  • Twitter Social Icon
  • Instagram Social Icon
Quick links

​

Contact us

Publications

Join a course

Research

Conferences

Social media

News

Privacy policy

Medical disclaimer