As ultra rare conditions, all those affected by Muscle GSDs around the world need to communicate and cooperate. 


In order to achieve our objectives, we need your help. By signing up with IamGSD, you will help us to convey patient-centered issues to researchers and clinicians.  Your experience is invaluable, and can only come from you.

In turn, you will have the following:

  • Access to download PDFs of any of our publications.

  • Join in our Annual Walking Challenge.

  • Request to have your details included on your country‘s map.

  • Book on our walking courses.

  • 10% discount on purchases through the online IAMGSD Shop.

Please lend us your support, it is free
Do it today!
What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 04/2021.

© IamGSD 2017 – 2021.

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