MCARDLE DISEASE SURVEY

The Copenhagen Neuromuscular center is conducting a big international survey study to investigate the personal experience of people with McArdle’s. It investigates the ketogenic diet, physical activity, fatigue, quality of life and sleep patterns.

Today we do not have any curative treatment for McArdle disease. Limited research suggests that a ketogenic diet could be a treatment option. 

The survey is open internationally. It is important that as many people as possible finish the survey for the results to be reliable. The survey is anonymous.

Please complete the survey by 31 March 2021.

What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 01/2021.

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