The Copenhagen Neuromuscular center is conducting a big international survey study to investigate the personal experience of people with McArdle’s. It investigates the ketogenic diet, physical activity, fatigue, quality of life and sleep patterns.

Today we do not have any curative treatment for McArdle disease. Limited research suggests that a ketogenic diet could be a treatment option. 

The survey is open internationally. It is important that as many people as possible finish the survey for the results to be reliable. The survey is anonymous.

Please complete the survey by 31 March 2021.