The German was machine translated and is now being reviewed and corrected.
PRIMARY CARE
As ultra rare conditions, muscle GSDs must be managed by a specialist. However, issues can arise in primary care, so general practitioners need to be well briefed. This booklet addresses that need in McArdle Disease.
The booklet takes a few moments to load, then you can then turn through the pages, search it and even install a copy on your computer.
ARE YOU, FOR EXAMPLE?
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Concerned about high baseline levels of Creatine Kinase (CK or CPK) ?
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Needing to know the inheritance pattern, to counsel a patient?
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Not clear what constitutes an emergency in McArdle disease?
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Want information on what is safe for physiotherapy?
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Unsure of the risks of medications, general anaesthetic and tourniquets?
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Uncertain about how McArdle disease may affect overall health?
All the answers, and a lot more information, are in this 20 page briefing on McArdle disease.
OTHER LANGUAGES
Originated by AGSD-UK, this booklet has been taken on by Euromac and produced in English, French, German, Greek, Italian, Spanish, Catalan and Turkish. You can download PDFs of these languages.
PDFs