Many of us are feeling anxious as we navigate the uncertainty of COVID-19 (coronavirus). We share some information to help everyone with a muscle GSD maneuver through these difficult times.
19 March 2020
The American Society of Gene and Cell Therapy has launched a video of their webinar: “Gene Therapy: Yesterday, Today, and Tomorrow”. It is an interesting introduction to this important subject.
22 December 2019
We have three amazing launches for Rare Disease Day – a brand new patient registry for North America, a “Get Moving” campaign and an offer of T-shirts, sweatshirts and goodies (closes 23 March).
29 February 2020
Walking courses are planned for Wales (AGSD-UK) – 6-13 August, Germany (SHG) – 18-22 September, and provisionally USA (IamGSD) – adjacent to the AGSD US conference 11-12 September.
5 January 2020