Registered non-profit  |  San Francisco, California, USA  |  |  © 2019 IAMGSD


The board of trustees has set these objectives. They are ambitious and long term, and guide our activities from year to year. You will see these reflected in our campaigns.

All together now!

  • Raise awareness amongst the medical profession, schools, sports clubs, and other relevant groups.
  • Provide support for patients, organizations and medical professionals.
  • Advocate the patient viewpoint and needs to governments, patient organizations and medical professionals.
  • Disseminate standards and best practice.
  • Contribute to the planning of research projects and to support and assist those projects.
  • Facilitate communications between organizations, especially internationally.
  • Work towards reducing the average age of diagnosis to age 10.