What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

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Register with us for special access to the web site, download PDFs and be kept in touch by email.

OUR POLICIES

These are important policy areas overseen by the IAMGSD Board. 
CHILDREN AND VULNERABLE ADULTS

IAMGSD will work with children, parents, those registered with us, and the community to ensure the rights and safety of children, young people and vulnerable adults.

EQUALITY AND DIVERSITY

IAMGSD is committed to providing a supportive and inclusive culture for all who we serve, our volunteers and other stakeholders. We recognize the positive value of diversity, promoting equality and challenging discrimination. 

DATA PROTECTION

The IAMGSD data protection policy sets out our commitment to protecting personal data and how we implement that commitment with regards to the collection and use of personal data.

COMPLIMENTS AND COMPLAINTS

IAMGSD welcomes suggestions on how to improve our activities and will give prompt and serious attention to any concerns. We anticipate that most issues will be resolved quickly by an informal approach. However, we have procedures for dealing with concerns and aim for a satisfactory conclusion for all involved.