What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: March 2020.

© IamGSD 2017 – 2020.

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EMERGENCY CARDS

These information and emergency cards should be carried at all times, as an episode of rhabdomyolysis can happen very unexpectedly.
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EMERGENCY INFORMATION?

This is a folding card small enough to fit in a wallet/purse. Keep some in the car and in your desk at work. It is a quick way to explain the effect of the disease to people you meet. There are also some pointers on the type of assistance that you might need.

The inside has guidance on what to do in an episode of rhabdomyolysis. Most importantly, it has a brief note for emergency doctors. There is a space for you to write in a name and/or phone number of a doctor who should be contacted.

“I have had two recent emergency visits to hospital. The ER staff thanked me for bringing the card with me and said it was very helpful.”

Harriet McGinnis, USA

MCARDLE DISEASE (GSD5)
TARUI DISEASE (GSD7) - coming soon