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These information and emergency cards should be carried at all times, as an episode of rhabdomyolysis can happen very unexpectedly.
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This is a folding card small enough to fit in a wallet/purse. Keep some in the car and in your desk at work. It is a quick way to explain the effect of the disease to people you meet. There are also some pointers on the type of assistance that you might need.

The inside has guidance on what to do in an episode of rhabdomyolysis. Most importantly, it has a brief note for emergency doctors. There is a space for you to write in a name and/or phone number of a doctor who should be contacted.

“I have had two recent emergency visits to hospital. The ER staff thanked me for bringing the card with me and said it was very helpful.”

Harriet McGinnis, USA

TARUI DISEASE (GSD7) - coming soon