RARE DISEASE DAY
To promote Rare Disease Day on
February 29th, 2020
we are launching three initiatives:
1 The IamGSD/CoRDS Patient Registry.
2 Our walking event to help you get fit.
3 IamGSD branded clothing to order.
We are launching a new patient-entered registry for muscle GSDs, aimed mainly at North America. Be part of history, share your experience to help everyone in the future.
The Registry is backed and operated by Sanford Research, the major non-profit research organisation. Read all about it on-line now.
We launch our campaign to encourage, motivate, and support ALL individuals with McArdle’s to GET MOVING.
Our campaign is for 11 weeks from rare Disease Day on February 29th to the start of our Activity Week on May 16th.
IamGSD BRANDED CLOTHING
We have white T-Shirts, and light grey Sweatshirts and Hoodies all in a wide range of unisex sizes. Second wind slogan on the front, with IamGSD logo and web address on the back. We are using a website which the manufacturer uses to support non-profit fundraisers, but in our case we just want to break even on a bulk order. Closing date 23 March.