PUBLICATIONS

IAMGSD has leaflets and books in English (and a few other languages) to support diagnosed people, their families, schools, employers and doctors. 

COURSES

IAMGSD organises walking courses to help people improve their condition. These have so far been held in the USA and the UK, with more countries to be included in future. 

CAMPAIGNS

IAMGSD campaigns for early diagnosis, the adoption of international standards of care and the provision centres of expertise.

RESEARCH

IAMGSD works to identify the needs of people affected by muscle GSDs and to stimulate, encourage and support research efforts to meet these needs.