IMPROVING THE LIVES OF PEOPLE AFFECTED BY MUSCLE GLYCOGEN STORAGE DISEASE
PUBLICATIONS
IAMGSD has publications in English (a few other languages) to support people with McArdle disease, their families, schools, employers and doctors.
COURSES
IAMGSD promotes walking courses to help people improve their condition. These have so far been held in the USA, UK and Germany, with more countries to be included in future.
CAMPAIGNS
IAMGSD campaigns for early diagnosis of McArdle’s and other mGSDs, the adoption of international standards of care and the provision of centres of expertise.
RESEARCH
IAMGSD works to identify the needs of people affected by McArdle disease and other muscle GSDs, and to stimulate, encourage and support research efforts to meet these needs.