The German was machine translated and is now being reviewed and corrected.
July 2nd to August 2nd 2020
IAMGSD has publications in English (a few other languages) to support people with McArdle disease, their families, schools, employers and doctors.
IAMGSD promotes walking courses to help people improve their condition. These have so far been held in the USA, UK and Germany, with more countries to be included in future.
IAMGSD campaigns for early diagnosis of McArdle’s and other mGSDs, the adoption of international standards of care and the provision of centres of expertise.
IAMGSD works to identify the needs of people affected by McArdle disease and other muscle GSDs, and to stimulate, encourage and support research efforts to meet these needs.