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COVID-19 vaccination

In this regard, please refer to the vaccine distribution plan for your country/local region.

To the best of our knowledge, there is no reason why COVID-19 vaccines should cause any particular issue relating to an individual having a muscle GSD. Please consult with your primary physician for individual guidance.

IMPROVING THE LIVES OF PEOPLE AFFECTED BY MUSCLE GLYCOGEN STORAGE DISEASE

PUBLICATIONS

 

IAMGSD has publications in English (a few other languages) to support people with McArdle disease, their families, schools, employers and doctors. 

COURSES

 

Learning management techniques on a walking course.

IAMGSD promotes walking courses to help people improve their condition. These have so far been held in the USA, UK and Germany, with more countries to be included in future. 

CAMPAIGNS
Our campaigns of activity and awareness raising.

IAMGSD campaigns for early diagnosis of McArdle’s and other mGSDs, the adoption of international standards of care and the provision of centres of expertise.

 

RESEARCH
Our research agenda for muscle GSD.

IAMGSD works to identify the needs of people affected by McArdle disease and other muscle GSDs, and to stimulate, encourage and support research efforts to meet these needs.