What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links

Please donate online to support our work.

Register with us for special access to the web site, download PDFs and be kept in touch by email.

If you have another muscle GSD please contact us.

Walking course California.



IAMGSD has leaflets and books in English (and a few other languages) to support diagnosed people, their families, schools, employers and doctors. 



IAMGSD organises walking courses to help people improve their condition. These have so far been held in the USA and the UK, with more countries to be included in future. 


IAMGSD campaigns for early diagnosis, the adoption of international standards of care and the provision centres of expertise.



IAMGSD works to identify the needs of people affected by muscle GSDs and to stimulate, encourage and support research efforts to meet these needs.