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As ultra rare conditions, all those affected by muscle GSDs around the world need to communicate and cooperate. 


In order to achieve our Objectives, we need your help. By signing up with IamGSD, you will lend your weight to help us with our Campaigns, and to convey patient-centered issues to researchers and clinicians.
Your backing is invaluable.

Remember there are many benefits which we make freely available, including:

  • Comprehensive information available through our website.

  • Free online access and download of PDFs of our full range of publications.

  • Join in with our Global Walking Challenge.

  • Have your details included on your country‘s map.

  • Watch the extensive list of videos on our YouTube channel. 

Please lend us your support, it is free
Do it today!
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