CLINICAL PRACTICE GUIDELINES
The CPG paper in Neuromuscular Disorders.
An international team of expert clinicians and researchers, led by IamGSD President Dr. Stacey Reason, has prepared internationally agreed Clinical Practice Guidelines for GSD V (McArdle disease) and GSD VII (Tarui disease).
These systematically developed guidelines outline diagnostic and management recommendations, including emergencies, for these two conditions.
Neuromuscular Disorders journal
The guidelines were published in the December 2021 issue of Neuromuscular Disorders, the official journal of the World Muscle Society. There are also 18 pages of Supplementary Information.
Both the paper and its supplementary material are published with Open Access, and are thus available free of charge to both clinicians and patients. Our thanks to Reneo Pharmaceuticals for their financial support of Open Access.
IamGSD has produced this free 40-page booklet
It contains both the Clinical Practice Guidelines and the Supplementary Material, together with a contents list.
The booklet is available as a PDF for free download, in US Letter and A4 sizes.