CLINICAL PRACTICE GUIDELINES

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15 page main paper

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A team of expert clinicians and researchers, led by IamGSD President Dr. Stacey Reason, has developed internationally agreed Clinical Practice Guidelines for GSD V (McArdle disease) and GSD VII (Tarui disease).

These systematically developed guidelines now outline diagnostic and management recommendations for these two conditions.

Neuromuscular Disorders journal

The guidelines were published in the December 2021 issue of Neuromuscular Disorders, the official journal of the World Muscle Society. The final paper is now available online. There is also a PDF of 18 pages of information to supplement the article.

Open Access
 
Both the paper and its supplementary material are published with Open Access, and are thus available free of charge to both clinicians and patients. Our thanks to Reneo Pharmaceuticals for their financial support of Open Access.

18 page supplementary material