We try hard to provide the best possible information. But we also advise that those affected by muscle GSDs must seek personalised advice from a suitably qualified and experienced doctor.

IamGSD publish all texts, illustrations, photographs and other materials on this web site as a free information service to the general public and those affected by muscle glycogen storage disease. The information is of a general nature and no part of it may be used as a substitute for obtaining personalised medical advice from an appropriately qualified doctor.


Information on this web site is subject to change without notice. Every reasonable effort is made to ensure that the information is correct, complete and up-to-date, but this cannot be guaranteed. 


No rights or obligations, whether contractual, in tort or other, shall arise as a result of use of the information contained on this site. IamGSD, its trustees, officers, employees, agents and other persons connected with the creation and updating of this information will not be liable for any damage or loss, direct or indirect, occasioned by the use of the information.

What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 04/2021.

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