CONNECT WITH PEOPLE
We have a series of interactive maps of different parts of the world showing the approximate location of patients, parents and professionals. You can zoom and search on the maps. The map pins are anonymous unless you ask us to add your details.
NOT EVERYONE IS INCLUDED
These maps are generated from our database. There is not a pin on the map for everyone because:
Some people have not requested to be included.
Some people are in families and are located at the same address.
In some cases we do not have a postal address, just the region, and these pins will all appear on top of each other in the center of their region.
Although there often appears to be a cluster of cases, in fact these usually simply mirror the concentrations of the general population.
WANT TO BE ADDED?
If you would like to be added please use the “Contact us” form to send in request with your full name and full postal address and let us know if you would like your name, email address or Facebook name included. We will add you in the next update.