CONNECT WITH PEOPLE

We have a series of interactive maps of different parts of the world showing the approximate location of patients, parents and professionals.
CURRENT MAPS

We are working to update these maps, to add more countries and to include people with all the muscle GSDs.

USING THE MAPS

Click on a country button to open that map in a new window. You can zoom and search on the map. Click on a pin to show the person’s details (if they have requested their details to be shown).

NOT EVERYONE IS INCLUDED

These maps are generated from our database. There is not a pin on the map for everyone because:

  • Some people have not requested to be included.

  • Some people are in families and are located at the same address.

  • In some cases we do not have a full postal address, just the region, and these pins will all appear on top of each other in the center of their region.

CLUSTERS?

Although there often appears to be a cluster of cases, in fact these usually simply mirror the concentrations of the general population.

DO YOU WANT TO BE ADDED?

If you would like to be added please use the “Contact us” form to send in request with your full name and full postal address and let us know if you would like your name, email address or Facebook name included. We will add you in the next update.