What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Please donate online to support our work.

Register with us for special access to the web site, download PDFs and be kept in touch by email.

ATTEND A CONFERENCE

For many people with a muscle GSD attending a conference will be the first time they have met anyone with the same condition as them. 
Links to more information will be provided when they become available.
 
Other associations holding relevant conferences - please let us have your dates and venues.
SELBSTHILFEGRUPPE GLYKOGENOSE
APRIL 17 to 19, 2020
GERMANY

Annual conference of the Germany GSD association, to be held in Duderstadt. Supported by board members of IamGSD.

AGSD US CONFERENCE
SEPTEMBER 11 to 20, 2020
UNITED STATES

Annual family conference of the Association for Glycogen Storage Disease, US, to be held in Cleveland, Ohio. Several IamGSD board members will be presenting, and will be hosting a muscle GSD workshop. 

AGSD UK CONFERENCE
OCTOBER 10 to 11, 2020 (provisional)
UNITED KINGDOM

Annual conference of the Association for Glycogen Storage Disease (UK), venue and final confirmation of date to follow. Supported by board members of IamGSD.