Lucy Smith

UK, age 8.

WHEELCHAIR TO WALKING
A mother’s account of early childhood problems, diagnosis, progress and sharing with other McArdleites and their mums. 

Sioned Williams

UK, age 66.

MY STORY OF A CAREER WITH GSD5

Navigating music college, performing with major orchestras, teaching, and recording for radio and television – with McArdle’s. 

Carol Hassall

UK, age 72.

THREE COMPOUNDED DIAGNOSES

Diagnosed at 28, put in a wheelchair, no guidance till 40. Now doing so much better.

Deborah Corcoran

UK, age 54.

HIKING MACHU PICCHU IN PERU

Diagnosed at 33, a heart attack, then got fit to hike the mountains in Peru.

Holly Goodwin

USA, age 44.

“MCARDLE’S IN EVERYDAY LIFE” PHOTO SERIES

Diagnosed at 33. A photo essay exploring what it is like to live with McArdle’s.

Irene Garton

USA, age 17.

APPLYING SECOND-WIND
Learning about second-wind and applying it to life.

Aidan Fernandez

USA, age 12.

A VERY POSITIVE ATTITUDE

Diagnosed at 8, Aidan has taken control and shares his advice on living with McArdle’s as a 12 year old.

Hans Meißner

Germany, age 20.

LEARNING HOW TO MANAGE

Diagnosed at 14, little advice, bad episodes of rhabdo but now learnt how to manage.

Anonymous

USA, age 20.

INCREASED ACTIVITY PAYS OFF

Diagnosed at 14 and then learning on a walking course later in the same year.

Bronte Thomas

UK, age 22.

FROM DIFFICULT DIAGNOSIS TO HELPING OTHERS

After diagnosis struggling almost more than before, but then finding her way and now doing well, and passing it on to others..

Gary McLellan

UK, age 57.

MY ADVENTURES IN 2019

In 2019 Gary rode his bike 190 miles to his McArdle clinic appointment. And had a 3-week backpacking trip to Myanmar.

Feike Dirks

Netherlands, age 66

MY ONE STEP AT A TIME

Very late diagnosis at 60, lots of damage done. Learnt so much from the walking course.

Melanie Graves

US, age 54.

THREE UNUSUAL EXCEPTIONS

In many ways a typical history, but with three unusual exceptions from the norm.

David Tompson

UK, age 57.

THREE PEAKS CHALLENGE

Planning and preparing for a McArdle’s group attempt on the UK “Three Peaks Challenge”.

James & Ned  Duggan

Australia, age 16.

ISOLATION AND CONFUSION GRADUALLY CHANGED

Many rhabdos after diagnosis at age 8, then finally getting to the walking course in Wales.