We are building a series of personal stories from people affected by muscle GSD. Each story may be just an anecdote, or a life story, or anything in between. Many will be illustrated with photos.
We’re keen to have all muscle GSDs represented. Would you like to tell your story?

Lucy Smith


Age 8

GSD5 McArdle’s

Sioned Williams


Age 66

GSD5 McArdle’s

Gary McLellan


Age 57

GSD5 McArdle’s

Susan Edgerley


Age 59

GSD7 Tarui

What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 04/2021.

© IamGSD 2017 – 2021.

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