What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: Feb 17, 2020.

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We are building a series of personal stories from people affected by muscle GSD. Each story may be just an anecdote, or a life story, or anything in between. Many will be illustrated with photos.
We’re keen to have all muscle GSDs represented. If you have an interesting story, or just a typical story, please get in touch.

Click to read one of our stories:

  • Coming soon: Susan Edgerley – USA – Age >21 – GSD7 Tarui

  • Coming soon: Matthew Arthur – UK – GSD3a Cori