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PERSONAL STORIES
OF MUSCLE GSD

We are building a series of personal stories from people affected by muscle GSD. Each story may be just an anecdote, or a life story, or anything in between. Many will be illustrated with photos.
We’re keen to have all muscle GSDs represented. Would you like to tell your story?
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Susan Edgerley

USA

Age 59

GSD7 Tarui

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Lucy Smith

UK

Age 8

GSD5 McArdle’s

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Aidan Fernandez

USA

Age 12

GSD5 McArdle’s

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Deborah Corcoran

UK

Age 54

GSD5 McArdle’s

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Anonymous

USA

Age 20

GSD5 McArdle’s

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Jeremy Michelson

USA

Age 24

GSD7 Tarui

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Gary McLellan

UK

Age 57

GSD5 McArdle’s

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Feike Dirks

Netherlands

Age 66

GSD5 McArdle’s

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Melanie Graves

USA

Age 54

GSD5 McArdle’s

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Irene Garton

USA

Age 17

GSD5 McArdle’s

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Fernando Neito

Spain

Age 44

GSD15 

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Sioned Williams

UK

Age 66

GSD5 McArdle’s

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Carol Hassall

UK

Age 72

GSD5 McArdle’s

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Hans Meißner

Germany

Age 20

GSD5 McArdle’s

CONTRIBUTING YOUR STORY

We would like many more stories, with some for each muscle GSD.
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Your story may be just an anecdote, a life story, or anything in between. The only constant is to have: a head and shoulders photo, your name, country, GSD, age at diagnosis, age and date at time of writing.

 

If you prefer we can set up an on-line interview and we will write your story for your approval. If writing yourself, please aim for a maximum of 800 words. If you have additional photos they would be welcome.

 

Whilst not ignoring the difficulties that people have, our purpose is to share how people have managed their condition in different ways. The stories should be an encouragement and offer examples of how to manage well.

You can submit your text in Word, a text file or just in an email. Photos should be sent attached to a separate email. For any queries, and to submit your story, please email: webmaster@iamgsd.org.

Contributing
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