PERSONAL STORIES OF GSD

We are building a series of personal stories from people affected by muscle GSD. Each story may be just an anecdote, or a life story, or anything in between. Many will be illustrated with photos.
We’re keen to have all muscle GSDs represented. Would you like to tell your story?
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Lucy Smith

UK

Age 8

GSD5 McArdle’s

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Sioned Williams

UK

Age 66

GSD5 McArdle’s

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Gary McLellan

UK

Age 57

GSD5 McArdle’s

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Aidan Fernandez

USA

Age 12

GSD5 McArdle’s

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Susan Edgerley

USA

Age 59

GSD7 Tarui

CONTRIBUTING YOUR STORY

We would like many more stories, with some for each muscle GSD.
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Your story may be just an anecdote, a life story, or anything in between. The only constant is to have: a head and shoulders photo, your name, country, GSD, age at diagnosis, age and date at time of writing.

 

If you prefer you can talk to us and we will write your story for your approval. If writing yourself, please aim for a maximum of 800 words. If you have additional photos they would be welcome.

 

Whilst not ignoring the difficulties that people have, our purpose is to share how people have managed their condition in different ways. The stories should be an encouragement and offer examples of how to manage well.

You can submit your text in Word, a text file or just in an email. Photos should be sent attached to a separate email. For any queries, and to submit your story, please email: webmaster@iamgsd.org.