VOLUNTEERING OPPORTUNITIES

Have you been helped by the work that was done by people before you? Do you want to pay it forward? There are volunteering opportunities with IamSGD. Here are some of the things we need.
      EXPERT PATIENTS

For the more rare muscle GSDs we are in  need of expert patients who can:

  1. Help us improve and expand on our coverage of your GSD on our web site and in our publications.

  2. Be available for us to put newly diagnosed patients in touch with you.

      COURSE PLANNERS

We would like to offer walking courses in many more countries. We need people who are aware of good walking locations in different countries, who would be able to research suitable accommodations, obtain local maps and guidebooks, and make any other ground arrangements. Then we will bring in the course leaders to run the courses. 

      SPECIAL EXPERTISE?

If you have any special knowledge, experience or expertise that you think could be of assistance to IamGSD, please get in touch.

      TRANSLATORS

Eventually we would like to cover all our muscle GSDs in four other languages as well as English. That will involve our web site and publications. We are looking for native speakers of: French, Italian and Spanish; to work with us on this. German is already expertly covered by Monika Weingartz who has translated so much already.  

      FACEBOOK ADMINS

We are committed to maintaining a high quality on the Facebook support groups we have registered. A careful watch is needed, and that means around the clock - so Admins in different time zones are a great help. If you think you could vet joining applications and monitor posts, we’d like to hear from you.

But also for any other ideas you have about how you could help,
PLEASE USE THE CONTACT FORM TO GET IN TOUCH
What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 07/2020.

© IamGSD 2017 – 2020.

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