JOIN IN WITH THE ANNUAL
GLOBAL WALKING WEEK

Every year for 6 years, individuals with muscle GSDs have participated where they are in this global walking challenge. Just walking one week each year, over the past five years, in total we have walked... 2500 miles!
MOTIVATION TO GET MOVING

While the primary feature of McArdle disease is “activity intolerance”... the most effective treatment option is regular physical activity. However, due to a lack of available information and informed clinicians, many patients continue to regard physical activity as a trigger for symptoms occurrence, rather than a safe and effective treatment option.

WALK RIGHT WHERE YOU ARE

So... to raise awareness of the importance of engaging in regular physical activity (150 minutes/week), this week-long walking event was established. It is not intended to be a competitive challenge against one another, but rather an opportunity to get moving in your locality - whether it be just a few steps, a few blocks, or a few miles each day. 

JOIN THE CHALLENGE

If you are interested in participating in this year’s Annual Walking Challenge, please email us here

or post on the McArdle’s Disease Facebook group to let us know your daily mileage.

COVID-19 INTERRUPTS PLANS!

Given all that is going on with Covid-19, we don't feel it is appropriate to run the week as planned, so we are not asking people to set up fundraiser pages.

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However, IamGSD would like to acknowledge the importance of movement for all living with muscle GSDs, so we'd love to hear on our Facebook groups about how
YOU are making MOVEMENT your MEDICINE.

GET SPONSORED!

Over the course of the week, we encourage you to reach out to family and friends for sponsorship, either a specific amount/mile or a total for the week.

 

You can do this easily by setting up a personal fundraising page with our partner CharityWeband sharing it on your social media.   

It is easy! When the new tab opens:

  • Click “Register” and enter your ‘Web Page Name’ and ‘Goal’ in US$.

  • Enter your Name and Contact Info, then click “Register"

FOLLOW THE INSTRUCTIONS ON SCREEN, OR IN THE IamGSD EMAIL .

  • Click the link to log-in and personalize your page. 

  • Click ‘Modify Page’. Upload a photo and write your appeal to sponsors.

  • Return to the Control Panel and Log-out.

TOGETHER WE ARE STRONGER
What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 07/2020.

© IamGSD 2017 – 2020.

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