GO ON A COURSE
IAMGSD ran its first walking course for people with muscle GSDs in California, led by board member Jeremy Michelson.
There are plans for many more. Stay tuned!
A video interview about the course with Jeremy Michelson.
CALIFORNIA – OCTOBER 2017
IAMGSD board member Jeremy Michelson organized our first walking course. It was held in Northern California, USA. A total of 20 people attended, from age 15 to age 78, with the muscle glycogen disorders McArdle’s and Tarui’s, and a cross section from those who had very recent hospitalizations with rhabdomyolysis to those who were “hill fit”. It was an international course - people came from USA, Canada and the UK. Walks were in the giant redwood forests and on the coast, culminating on the last day in a climb of 700 feet. Amongst the participants were the parents of the young people attending, and this was a great opportunity for them to compare notes. Watch out for details of future courses in the US.
All about the fun and benefit of a walking course.
WALES 2010 TO 2018
AGSD-UK devised the walking courses for people with McArdle’s and Tarui’s. It originated in the awareness raising and fund raising “Walk over Wales” in 2010, with the first course run in 2011 and every year since, sometimes two courses in the year. Although called walking courses they in fact are so much more - including management techniques for daily living and comradeship. Watch the video to get a feel for what a course is like.