Events related to muscle glycogen storage diseases from IamGSD and other organisations worldwide.
February 29, 2020

Rare Disease Day

Global celebration of rare diseases. Join in wherever you are.

May 15-16, 2020

Rare Disease Conference

European conference on rare diseases and orphan products, Stockholm, Sweden. 

May 18-24, 2020

IamGSD Global Walking Week

Our annual week to get you moving and motivated to improve your aerobic fitness. And at the same time raise awareness and maybe raise some funds. 

July 2 – August 2, 2020

Moving My Muscles Month

Get moving, get fit – join us where you are – in celebration of 10 years since the Walk over Wales milestone event.

August 6-13, 2020

Walking with McArdle’s course

AGSD-UK’s walking course in the Snowdonia National Park, Wales. The 10th year of the course!


August 13-17, 2020

Children & Parents event

Following on from the walking course, also in the Snowdonia National Park, Wales. A get-together and learning experience for children with McArdle’s.


September 11-12, 2020

AGSD US Family Conference

Patient, family, medical conference, Cleveland, Ohio. IamGSD board members will hold workshops on muscle GSDs. 

October 17-18, 2020

AGSD-UK Annual Conference

Patients and families conference, Wyboston Lakes, Bedfordshire. Workshops on muscle GSDs. 

What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 04/2021.

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