TIPS FOR A POSITIVE FUTURE
FINDING ALL THE SUPPORT YOU NEED
Friends will be interested and support you once you have explained.
YOUR FRIENDS SUPPORT YOU
-
When you tell your friends about your McArdle’s there is likely to be a positive response.
-
There is a useful IamGSD “At Home” leaflet to help you tell them. And videos on YouTube.
-
Once your friends understand, they will better prepared to support you.
-
They’ll be happy to go slow, or take a break and not mention it.
-
They will watch out for you and step in to help.
TIPS FOR A POSITIVE FUTURE
COMING TO ACCEPTANCE
McArdle-ites explain some of how they manage.
YOU FOCUS ON WHAT YOU CAN DO
-
It’s amazing how much you can do, despite 80% of your carbohydrate energy being inaccessible.
-
Once you are in “second wind” you can do most aerobic activity.
-
Even if at times you go at a bit slower pace than other people.
-
You can do intense anaerobic activity in bursts of around 6 seconds.
-
Tasks like that, you simply break down into small sections.
TIPS FOR A POSITIVE FUTURE
LEARNING ABOUT MCARDLE’S
SECOND WIND IS NO LONGER A PROBLEM
-
As you improve fitness, getting into “second wind” becomes quite easy.
-
It’s a very positive feeling and makes activity so much more achievable and enjoyable.
-
If less aerobically fit, it can be a struggle, maybe taking as long as 10 minutes.
-
Yet the most aerobically fit amongst us can easily enter “second wind” in under 7 minutes.
OK, second wind is not really THAT fast.
TIPS FOR A POSITIVE FUTURE
PUTTING THINGS IN PERSPECTIVE
GETTING THE BIG VIEW
-
Seeing a big landscape by hill walking can help put your troubles into perspective.
-
Or seeing a big landscape in some other way, such as at sea.
-
You can realise that your muscle issues are a small part of you.
-
And you in turn are really a very small part of a very big world.
-
There are very many people facing much larger problems.
McArdle-ites get the big perspective in the Italian Dolomites.
TIPS FOR A POSITIVE FUTURE
LOOKING FOWARD TO THE FUTURE
Building activity into your life delivers rewards.
YOU FEEL LIKE DOING MORE
-
The more you do, the more energy you feel you have.
-
Undertaking even more activity is not a problem, it becomes a virtuous cycle.
-
In broad terms:
– the more you do
– the better you feel
– the more you want to do.