OUR GOVERNANCE

We are an international non-profit corporation registered and based in California, USA. The PDF documents listed below are in English.
ARTICLES OF ASSOCIATION

IAMGSD was incorporated as a California Nonprofit Public Benefit Corporation on 22 November 2016. The Articles of Association may be downloaded here.

BYLAWS

The Corporation does not have members within the meaning of Section 5056 of the Corporations Code of the State of California, and shall be governed by the Board in accordance with these Bylaws. Any action that otherwise requires approval of the members under the Corporations Code shall require only the approval of the Board. The Corporation may from time to time use the term “members” to refer to persons associated with it, but such persons shall not be members within the meaning of Section 5056 of the Corporations Code. The bylaws may be downloaded here.

NON-PROFIT STATUS

IAMGSD has obtained tax exemption in the State of California.

 IAMGD is exempt from federal income tax under Internal Revenue
Code (IRC) Section 501(c) (3). Donors can deduct contributions they
make under IRC Section 170. We are also qualified to receive tax deductible bequests, devises, transfers or gifts under Section 2055, 2106, or 2522. You can download the certificates. 

LEGAL ADVISERS

The IAMGSD's legal adviser is: Munger, Tolles & Olson LLP, 355 South Grand Avenue, Los Angeles, CA 90071, USA.

OUR POLICIES

 
These are important policy areas overseen by the IAMGSD Board. 
CHILDREN AND VULNERABLE ADULTS

IAMGSD will work with children, parents, those registered with us, and the community to ensure the rights and safety of children, young people and vulnerable adults.

EQUALITY AND DIVERSITY

IAMGSD is committed to providing a supportive and inclusive culture for all who we serve, our volunteers and other stakeholders. We recognize the positive value of diversity, promoting equality and challenging discrimination. 

DATA PROTECTION

The IAMGSD data protection policy sets out our commitment to protecting personal data and how we implement that commitment with regards to the collection and use of personal data.

COMPLIMENTS AND COMPLAINTS

IAMGSD welcomes suggestions on how to improve our activities and will give prompt and serious attention to any concerns. We anticipate that most issues will be resolved quickly by an informal approach. However, we have procedures for dealing with concerns and aim for a satisfactory conclusion for all involved. 

What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 05/2020.

© IamGSD 2017 – 2020.

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