PROMOTE AWARENESS ON
RARE DISEASE DAY

 
 An annual event coordinated by EURORDIS.
Get ready for February 28th 2021!
Hundreds of patient organizations from all over the world
help to raise awareness.
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THE OBJECTIVE

The objective of Rare Disease Day is to raise awareness about rare diseases and their impact on the lives of patients.

 

It is always the last day of February, so usually the 28th and in leap years it is the 29th. On and around this day hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities.

 

GET INVOLVED

Rare Disease Day is for EVERYONE - patients, family members, friends, clinicians, researchers, and policy makers. To acknowledge Rare Disease Day, IamGSD has set out three campaigns, see below.

TELL YOUR STORY

Share your story with family and friends to help raise awareness of how living with a muscle GSD affects you.

SHARE YOUR PHOTOS

Share your photos to show your solidarity with the rest of the world for Rare Disease Day by using the hashtags - #RareDiseaseDay and #GetMoving.

What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 04/2021.

© IamGSD 2017 – 2021.

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