HELP TO PROMOTE
RARE DISEASE DAY
This annual event is coordinated by EURORDIS.
Get ready for February 29th 2020!
Hundreds of patient organizations from countries all over the world help to raise awareness.
THE MAIN OBJECTIVE
of Rare Disease Day is to raise awareness about rare diseases and their impact on patients’ lives. For 2019 the theme is ‘Bridging Health and Social Care’. This aligns with IamGSD’s mission to enhance the quality of life of people affected by muscle glycogen storage disease.
Through a variety of campaigns, IamGSD works to raise awareness, provide support, advocate the patient viewpoint, disseminate standards and best practice, contribute to research projects, facilitate communications and ultimately work to reduce the age of diagnosis.
GET INVOLVED
Rare Disease Day is for EVERYONE - patients, family members, friends, clinicians, researchers, & policy makers.
There are a number of different ways you can get involved & #ShowYourRare! You can tell your story, share your photos, and/or donate to IamGSD.
TELL YOUR STORY
Share your story with family and friends to help raise awareness of how muscle GSD affects you.
SHARE YOUR PHOTOS
Share your photos to show your solidarity with the rest of the world for Rare Disease Day. #ShowYourRare is an interactive social media campaign for Rare Disease Day. You can get involved during the month of February by painting your face and sharing a photo using the hashtag #ShowYourRare
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Paint your face using brightly coloured face paints OR use one of the RareDiseaseDay frames on FaceBook
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Pose for a selfie or group photo
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Post the picture on social media using the hashtags #ShowYourRare and #RareDiseaseDay
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Share your photo with family and friends
DONATE TO IamGSD
IamGSD needs your support through donations and fundraising. Your donation helps to sustain our work, and to assist people affected by muscle GSDs.
The donate button is right here, below.