Videos are a great way to explain aspects of muscle GSDs and help people manage their condition. We have quite an extensive list of videos on our own YouTube channel, and are pleased to acknowledge the channels of AGSD-UK and Euromac. We feature here three key videos
We have our own IamGSD YouTube channel with many informative and educational videos. Here is the link, plus links to two other useful channels.
These are some of the key videos giving good introductions to McArdle’s and some other muscle GSDs. Two of them have versions with subtitles in various languages – see buttons below the videos.
INTRODUCTION TO THE EUROMAC REGISTRY
This is an introduction to McArdle’s and related muscle GSDs, in the context of the Euromac Registry. Euromac is a consortium of medical and research institutes across Europe. The registry will be used to better understand these conditions and to help plan future multi-centre trials.
A MEDICAL CONFERENCE TALK ON MUSCLE GSDs
A talk on McArdle disease and other rare muscle GSDs by Prof. Ros Quinlivan, MBBS, DCH, FRCPCH, FRCP, MD at the 44th AGM of the European Alliance of Neuromuscular Disorders Associations. Given in September 2014, in Ljubljana, Slovenia.
WALKING WITH MCARDLE’S
An introduction to AGSD-UK’s one-week residential courses for people with McArdle’s and Tarui’s. The video follows the group as they learn tips to help day-to-day management of their muscle condition while enjoying their walking in the countryside.