We are just starting our own work on videos, but are pleased to acknowledge great work by both Euromac and AGSD-UK. Their main two videos are below.
INTRODUCTION TO THE EUROMAC REGISTRY
This is an introduction to McArdle’s and related muscle GSDs, in the context of the Euromac Registry. Euromac is a consortium of medical and research institutes across Europe. The registry will be used to better understand these conditions and to help plan future multi-centre trials.
A MEDICAL CONFERENCE TALK ON MUSCLE GSDs
A talk on McArdle disease and other rare muscle GSDs by Prof. Ros Quinlivan, MBBS, DCH, FRCPCH, FRCP, MD at the 44th AGM of the European Alliance of Neuromuscular Disorders Associations.
September 2014, in Ljubljana, Slovenia.
WALKING WITH MCARDLE’S
An introduction to AGSD-UK’s one-week residential courses for people with McArdle’s and Tarui’s. The video follows the group as they learn tips to help day-to-day management of their muscle condition while enjoying their walking in the countryside.