YOUR DONATION HELPS...

IamGSD needs your support through donations and fundraising. This is to help sustain our work, and to assist people affected by Muscle GSD.  

We assist people to understand how to manage their condition.

We contribute our knowledge and some funding to research.

ONGOING NEEDS
We have an ongoing need to raise funds to: 
  • Assist children to attend courses and events which will put them on the right path for managing their condition.
  • Develop our resources and publications.
  • Translate our resources into multiple languages.
  • Contribute the patient voice to research projects.
SPECIAL PROJECTS
In addition we will, from time to time, launch specific appeals to raise funds for special projects. These can include helping to fund research work. Watch out for an opportunity to contribute to our special fundraising campaigns and appeals.
WHAT THEY ARE NOT FOR
  • We don’t have an office with rent and overheads.
  • We don’t have any paid staff.
  • We don’t pay for professional services - we are very grateful to those who provide us with pro-bono services.  
  • We don’t spend very much on our governance costs, they are kept to a minimum.
  • We don’t normally pay any expenses to our board members.
FOR ANY QUERIES, PLEASE 
USE THE CONTACT FORM TO GET IN TOUCH
What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 07/2020.

© IamGSD 2017 – 2020.

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