OUR VISION

 

To enhance the quality of life of people affected by muscle glycogen storage disease.

Taking the long view on a walking course in Wales

OUR MISSION

 

To connect, educate, and support patients, clinicians, and researchers across all borders.

Across all borders of GSD, age and country on a walking course in California

OUR OBJECTIVES

 
The board of trustees has set these objectives. They are ambitious and long term, and they guide our activities from year to year. You will see these reflected in our campaigns.

All working together – walking course in California

  • Raise awareness amongst the medical profession, schools, sports clubs, and other relevant groups.
 
  • Provide support for patients, organizations and medical professionals.
   
  • Advocate the patient viewpoint and needs to governments, patient organizations and medical professionals.
  • Disseminate standards and best practice.
  • Contribute to the planning of research projects and to support and assist those projects.
  • Facilitate communications between organizations, especially internationally.
  • Work towards reducing the average age of diagnosis to age 10.
What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 10/2020.

© IamGSD 2017 – 2020.

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