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Muscle GSD
About Muscle GSD
The GSDs we cover
GSD3a – Cori
GSD5 – McArdle
Simply explained
Could be McArdle's
Newly diagnosed
Personal stories
Pain? What pain?
Tips for a positive future
Psychological aspects
Positive thoughts
McArdle FAQs
Teaching each other
GSD7 – Tarui
Social media – Facebook
Clinical Practice Guidelines
Personal stories
GSD9d
Social media – Facebook
GSD13
GSD15
Personal stories
Personal stories of muscle GSD
Susan Edgerley – GSD7
Jeremy Michelson – GSD7
Lucy Smith – GSD5
Sioned Williams – GSD5
Feike Dirks – GSD5
Melanie Graves – GSD5
Carol Hassall – GSD5
Hans Meißner – GSD5
Anonymous male – GSD5
Irene Garton – GSD5
Aidan Fernandez – GSD5
Gary McLellan – GSD5
Deborah Corcoran – GSD5
David Thompson – GSD5
Holly Goodwin – GSD5
Bronte Thomas – GSD5
James & Ned Duggan – GSD5
Resources
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Emergency cards
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Campaigns
Introducing our campaigns
1 Reducing the age of diagnosis
2 Helping patients to understand
3 Encouraging regular physical activity
4 Promoting Clinical Practice Guidelines
5 Improving access to care
6 Contributing to research
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Join social media
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Medical
When to seek urgent medical care
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Background information
Clinical Practice Guidelines
Managing muscle GSDs
Continuum of Care model
Clinical Practice Guidelines
Medical Overview booklet
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COVID-19 coronavirus
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Scientific Advisory Board
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Dr. Jared Schreiner
Prof. Ros Quinlivan
Dr. Salman Bhai
Dr. Richard Godfrey
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Research
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Cochrane Reviews
Pharmacological
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Euromac papers
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Research papers
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