GET MOVING CAMPAIGN

On Rare Disease Day on February 29th 2020, IamGSD launched its “Get Moving” campaign – 11 weeks of encouraging all with McArdle’s to get moving and improve their condition.
WHAT

A campaign to encourage, motivate, and support ALL individuals with McArdle’s to GET MOVING.


WHY

While the primary feature of McArdle disease is “activity intolerance”, the most effective treatment option is regular physical activity.


WHEN 

February 29th – May 16th 2020 (11 weeks).


HOW 

Move your body each day – whether it be a few steps, a few blocks, or a few miles.


WHO

All individuals with a muscle GSD - family, friends, and puppies are welcome to join in!

Please note: Although most individuals with McArdle disease adapt well to regular exercise, training should be carefully designed to ensure a gradual progression of exercise intensity – especially in those that are more severely affected.

What is IamGSD?

We are a patient-led international group encouraging efforts by research and medical professionals, national support groups and individual patients worldwide.

What is Muscle GSD?

Human bodies make glucose from carbohydrates. Excess glucose is stored as glycogen in our muscles and liver. Muscle glycogen storage disease is when our muscles cannot convert their glycogen back into glucose to power our muscles.

Muscle GSDs links
If you have another muscle GSD please contact us.

Site updated: 10/2020.

© IamGSD 2017 – 2020.

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