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GET MOVING CAMPAIGN
On Rare Disease Day on February 29th 2020, IamGSD launched its “Get Moving” campaign – 11 weeks of encouraging all with McArdle’s to get moving and improve their condition.
WHAT
A campaign to encourage, motivate, and support ALL individuals with McArdle’s to GET MOVING.
WHY
While the primary feature of McArdle disease is “physical activity intolerance”, the most effective treatment option is regular physical activity.
WHEN
February 29th – May 16th 2020 (11 weeks).
HOW
Move your body each day – whether it be a few steps, a few blocks, or a few miles.
WHO
All individuals with a muscle GSD - family, friends, and puppies are welcome to join in!
Please note: Although most individuals with McArdle disease adapt well to regular exercise, training should be carefully designed to ensure a gradual progression of exercise intensity – especially in those that are more severely affected.
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